Genetic Alliance

Results: 312



#Item
91Nursing research / Genetic Alliance UK / Clinical research / Rare disease / National Institute for Health and Clinical Excellence / National Institutes of Health / National Health Service / National Institute for Health Research / Clinical trial / Health / Medicine / Epidemiology

The National Alliance for people with rare diseases & all who support them EUROPLAN UK National Conference Report

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Source URL: www.raredisease.org.uk

Language: English - Date: 2014-09-26 10:16:08
92Rare diseases / National Institutes of Health / Rare Disease Day / Genetic Alliance UK / Disease / Pharmaceutical industry / RDCRN Contact Registry / Health / Medicine / Epidemiology

The National Alliance for people with rare diseases & all who support them Report of Activity 1st July 2011 to 31st December 2012

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Source URL: www.raredisease.org.uk

Language: English - Date: 2013-02-05 11:46:48
93Healthcare / Hospice / Genetic Alliance UK / Chronic / Rare disease / Health care / National Health Service / Socialized medicine / Health / Medicine / Medical terms

Response to Future Forum 2: integration of services About Rare Disease UK Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We have over 1000 registered members inclu

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Source URL: www.raredisease.org.uk

Language: English - Date: 2011-11-22 05:28:23
94Medical terms / Genetic Alliance UK / Rare disease / Chronic / Health care / National Health Service / Medical home / Palliative care / Health / Medicine / Healthcare

RD-UK-WalesSurvey-Report-front-cover-1

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Source URL: www.raredisease.org.uk

Language: English - Date: 2013-02-25 09:15:14
95Syndromes / Motor neurone disease / Genetic Alliance UK / Ataxia telangiectasia / Amyotrophic lateral sclerosis / Clinical trial / Controversies related to chronic fatigue syndrome / Health 2.0 / Health / Rare diseases / Epidemiology

Experiences of Rare Diseases: Patients and Families in Wales Experiences of Rare Diseases: Patients and

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Source URL: www.raredisease.org.uk

Language: English - Date: 2013-02-25 10:36:49
96Caregiver / Genetic Alliance UK / Rare disease / Health care / Chronic / Carers rights movement / The Princess Royal Trust for Carers / Health / Medicine / Family

Living with Long Term Conditions – A Policy Framework - A response from Rare Disease UK and the Northern Ireland Rare Disease Partnership About us It is estimated that 1 in 17 people will be affected by a rare disease1

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Source URL: www.raredisease.org.uk

Language: English - Date: 2011-06-21 06:26:27
97NHS England / NHS Evidence / National Institute for Health and Clinical Excellence / Genetic Alliance UK / Motor neurone disease / Amyotrophic lateral sclerosis / Healthcare in England / Health / Rare diseases / National Health Service

Rare Disease UK’s response to the National Quality Board engagement exercise on the library of NICE Quality Standard NHS healthcare topics Are there any significant gaps or omissions in the proposed library? If so, wha

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Source URL: www.raredisease.org.uk

Language: English - Date: 2011-10-14 11:32:14
98Rare diseases / Genetic Alliance UK / Medical terms / Rare Disease Day / National Health Service / Disease / Optimising Management of Angina / Health / Epidemiology / Medicine

Annual Report July 2010 June 2011

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Source URL: www.raredisease.org.uk

Language: English - Date: 2011-09-29 09:44:37
99European Organization for Rare Diseases / European Union / European Year of Intercultural Dialogue / Public health / European Year for Combating Poverty and Social Exclusion / Framework Programmes for Research and Technological Development / Rare Disease Day / Genetic Alliance UK / Health / Epidemiology / Rare disease

“European Year for Rare Diseases in 2019” Questions & Answers May 2013 Why a European Year for Rare Diseases? Raising public awareness as well as reaching out to policy makers is one of the main

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Source URL: www.eurordis.org

Language: English - Date: 2014-09-16 10:55:00
100Healthcare / NHS England / Rare disease / Health economics / National Health Service / Patient safety organization / Health / Medicine / Genetic Alliance UK

Improving Lives, Optimising Resources: How a strategy for rare diseases will benefit the people of England The National Alliance for people with rare diseases & all who support them

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Source URL: www.raredisease.org.uk

Language: English - Date: 2011-06-02 11:59:07
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